A new petition aimed at Endocrinologists around the world has been created by Michelle Bickford.
Thyroid patients are increasingly aware that there is a deficiency in thyroid knowledge among endocrinologists. As specialists of the endocrine system, the title, endocrinologist, expresses expertise and richness in experience. Despite the promise of this title, we, the patients with thyroid dysfunction, are still suffering. The quality of our lives is diminished due to the difficulty we have finding doctors who are effective in thyroid management. The patient experience seems to demonstrate that there are large numbers of endocrinologists who are unable to diagnose thyroid disorder and/or have outdated knowledge of treatment methods.
Please sign this petition in an effort to increase awareness of this problem and hopefully, effect change.
Thyroid Patient Advocacy (Reg. Charity No. 1138608) www.tpa-uk.org.uk is in the process of creating the first world register to T4-only therapy. This short, but extremely important survey is applicable only to those who continued to suffer symptoms on T4-only therapy, and who found those symptoms were mitigated or disappeared once they were started on a T3 hormone containing product.
The Register of counterexamples will be used to draw to the attention of those responsible authorities throughout the world, the dire need for an urgent re-examination of the existing protocol for the diagnosis and management of the symptoms of hypothyroidism and challenge those studies previously undertaken (900 participants) that concluded that T4/T3 combination worked no better than T4-only.
Counterexamples prove incontrovertibly that endocrinology's stance is dangerously wrong. Doctor’s continuance of practising in line with the T4-only treatment diktat for all sufferers of the symptoms of hypothyroidism is pernicious. The number of patient counterexamples, at the present time, stands at 1610.
(A counterexample is a situation which fits the concept or premise of an idea but produces a different result. To be responsible, a scientist who finds a counterexample to his idea, must limit or abandon his idea as unworkable or not reliable. The T4-therapy does not work for all.)
If you fit this category, you should complete the 3 questions with either 'YES', 'NO' or N/A here http://www.tpa-uk.org.uk/register_of_counterexamples.php . All responses will be collated online, and email addresses (if provided) will be used ONLY for contact at a later date should this becomes necessary.
TPA-UK is an independent user-led organisation established to ensure that all thyroid disease sufferers are given a correct diagnosis and receive effective treatment.
TPA believes all patients should have access to all relevant tests and treatment, including synthetic or natural T3.
As a result, TPA campaigns for better education in diagnostics and treatment and provides extensive support and guidance for all sufferers.
In TPA's efforts, the following critical questions are being asked but remain unanswered:
WHY do the GMC, the RCP, the BTA et al. deliberately choose to ignore the scientific evidence that has been available for over 40 years?
WHY are medical associations ignoring the 13% failure rate of T4-only therapy for the past 50 years? Why are patient's complaints dismissed?
WHY has there been no correction to the RCP statement when there are patients who are counterexamples to the validity of T4-only therapy?
WHY is the confusion of two definitions for hypothyroidism allowed to continue?
WHY are individual symptoms of hypothyroidism stated to be non-specific when Baisier found groups of these symptoms may be quite specific?
WHAT further investigations for non-thyroidal causes are recommended as relevant to the symptoms of hypothyroidism when pituitary and thyroid GLAND function tests are biochemically normal Levels of fT3, rT3 and adrenal levels?
- WHY are the studies by Das (2007) and Lewis (2008), which found that patients could be successfully treated with thyroid extract being ignored?
- WHY is medicine ignoring false negative test results?
- WHY do doctors refuse to explain and/or justify their decisions, thereby withholding information necessary for valid consent to treatment?
- WHY does the NHS refuse to take steps to protect human rights when sufferers are put at risk through a disregard of the demand that patients should be treated with fairness, respect, equality, dignity and autonomy?
- WHY are laboratory discrepancies in serum testing being ignored?
We really appreciate the strong stand Sheila taking. It is well past time that the world was helped to understand the depth of suffering thyroid patients have endured through insufficient testing and unsatisfactory medication options.