The Thyroid Association of New Zealand Inc. is a patient-to-patient support group, started in July 2008, using the name
New Zealand Thyroid Association. We became incorporated on 18 September 2009.
We are a voluntary organisation, whose founding members came together when GSK changed their Eltroxin formulation, causing many adverse reactions among users.
We believe that every person has the right to be healthy and symptom-free and the right to a treatment plan that works
for them. We feel it is time for the medical profession to amend the current protocol regarding the treatment of thyroid disorders, particularly hypothyroidism.
TPA-UK is creating a world-wide Register of Counter-examples to T4-only therapy. If you continued to experience hypo-symptoms while on T4-only medication, and improved once adding a form of T3, this is for you! It is a short survey and completely anonymous if you wish. Go to the Register page and you will find the link for the survey.
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In our efforts to spread the word about the inefficiency of the TSH test and the inadequacy of the treatment options offered by the majority of doctors, world-wide, we have added some content from THYROID PATIENT ADVOCACY - UK.
TPA-UK is an independent user-led organisation established to ensure that all thyroid disease sufferers are given a correct diagnosis and receive effective treatment.
TPA believes all patients should have access to all relevant tests and treatment, including synthetic or natural T3.
As a result, TPA campaigns for better education in diagnostics and treatment and provides extensive support and guidance for all sufferers.
In TPA's efforts, the following critical questions are being asked but remain unanswered:
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WHY do the GMC, the RCP, the BTA et al. deliberately choose to ignore the scientific evidence that has been available for over 40 years?
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WHY are medical associations ignoring the 13% failure rate of T4-only therapy for the past 50 years? Why are patient's complaints dismissed?
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WHY has there been no correction to the RCP statement when there are patients who are counterexamples to the validity of T4-only therapy?
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WHY are individual symptoms of hypothyroidism stated to be non-specific when Baisier found groups of these symptoms may be quite specific?
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WHAT further investigations for non-thyroidal causes are recommended as relevant to the symptoms of hypothyroidism when pituitary and thyroid GLAND function tests are biochemically normal Levels of fT3, rT3 and adrenal levels?
- WHY are the studies by Das (2007) and Lewis (2008), which found that patients could be successfully treated with thyroid extract being ignored?
- WHY is medicine ignoring false negative test results?
- WHY do doctors refuse to explain and/or justify their decisions, thereby withholding information necessary for valid consent to treatment?
- WHY does the NHS refuse to take steps to protect human rights when sufferers are put at risk through a disregard of the demand that patients should be treated with fairness, respect, equality, dignity and autonomy?
- WHY are laboratory discrepancies in serum testing being ignored?
We really appreciate the strong stand Sheila taking. It is well past time that the world was helped to understand the depth of suffering thyroid patients have endured through insufficient testing and unsatisfactory medication options.
