Posted by Tracey Keen on Friday, November 11, 2011,
since my last blog here! I'm actually not surprised...this has been a difficult year for many in Christchurch...earthquakes & snow, broken houses & roads & lives. Stress does crazy things to those of us needing thyroid hormone replacement - it increases the need, as does the cold weather! So Spring & Summer are welcome sights here...although today's wind is rather wicked, it just blew our chicken coop over so a rebuild is definitely on for this weekend! I'm sure we are all looking forward to C... Continue reading ...
Posted by Tracey Keen on Wednesday, November 10, 2010,
1/ Make sure the doctor writes it correctly - tablet or capsule strength, total pills ordered AND the words Take as Directed... not Take 1 daily - This is particularly important if you are self-dosing and not strictly following the GP's dosing plan. You could end up with only 90 pills...enough for 1 per day for 90 days. 2/ Make sure whoever faxes your script to PCNZ (you or your pharmacist or dr) - keeps a record of when they sent it so the excuse..."We haven't received the script yet" can be ... Continue reading ...
Posted by Tracey Keen on Wednesday, November 3, 2010,
Are you a Synthrocrat or an Armourarian? A Levoxylite or Cytomelican? Or maybe you are just proud to be a generican? Make sure you take part in today's Thyroid Vote 2010!
http://thyroid.about.com/b/2010/11/02/thyroid-vote-drugs.htm Continue reading ...
Posted by Tracey Keen on Thursday, August 5, 2010,
Posted by Tracey Keen on Thursday, August 5, 2010,
It’s very common for thyroid patients to be low in vitamins, minerals & other hormones etc Some examples are... Iron/Ferritin, Vitamin D, Vitamin B's, Magnesium, Potassium, Zinc, Selenium, Iodine, DHEA, Cortisol, Progesterone, Estrogen, Testosterone Have you checked your levels lately? Continue reading ...
Posted by Tracey Keen on Thursday, July 22, 2010,
We are in the process of helping with the creation of the first ever WORLD REGISTER OF COUNTEREXAMPLES TO LEVOTHYROXINE (T4)-ONLY THERAPY. The objective of this Register is to draw to the attention of those responsible authorities the dire need for an urgent re-examination of the existing protocol for the diagnosis and management of the those suffering the symptoms of hypothyroidism. PLEASE NOTE: This questionnaire is for the use of ONLY those people who were prescribed levothyroxine (T4-only)... Continue reading ...
Posted by Tracey Keen on Wednesday, June 30, 2010,
Dr. Gordon RB Skinner MD DSc FRCOG FRCPath
has begun a World Thyroid Register which will consist of a list of completely confidential names. It is hoped to gather at least 50,000 signatories, with the goal of rallying the signatories to mount campaigns to deal with issues related to thyroid patients worldwide. Please take the time to sign this register - we need to make a stand together! Names and email addresses will be confidential, and not shared.
http://www.worldthyroidregister.com/default.h... Continue reading ...
Posted by Tracey Keen on Thursday, June 10, 2010,
It happens often – someone will join a patient group, and right off the bat, you notice they are very defensive about certain subjects, know-it-all argumentative, condescendingly overbearing, and/or paranoid. They may quickly fly off the handle. They might see implications in words that were never there. They can also be childish in their reactions, obsessive about certain topics or people, mistrustful of others, forgetful, combative, and/or jittery. Even worse,... Continue reading ...
Posted by Tracey Keen on Thursday, May 20, 2010,
FDA Issues Warning About Thyroid Drug Propylthiouracil
- Be aware that severe liver injury has occurred in patients taking propylthiouracil.
- Read the Medication Guide when picking up a prescription for propylthiouracil. It will help you understand the potential risks and benefits of this medication.
- Contact your healthcare professional if you have fever, loss of appetite, nausea, vomiting, tiredness, itchiness, dark colored urine, or yellowing of your skin or eyes while taking propylthiou...
Continue reading ...
Posted by Tracey Keen on Thursday, May 20, 2010,
THYROID SURGERY WITHOUT A NECK SCAR:
EXPLORING SCARLESS TRANSAXILLARY ROBOTIC THYROID SURGERY WITH DR. EMAD KANDIL
If you are going to have a thyroid surgery down the line, you will definitely want to learn more about a new technology -- scarless underarm robotic thyroid surgery. You end up with no visible scar, and there is a faster recuperation time and
less pain associated with this groundbreaking new surgical technique. http://thyroid.about.com/od/cancergoiternodules/a/transaxillary-roboti... Continue reading ...
Posted by Tracey Keen on Tuesday, May 18, 2010,
A new study shows that the addition of T3 is superior to Levothyroxine/T4-Only Thyroid treatment for Hypothyroidism. Read the Editorial here - http://www.eje-online.org/cgi/content/full/161/6/955 or purchase a copy online for $25 at the European Journal of Endocrinology website - http://www.eje-online.org/cgi/content/full/161/6/895 Continue reading ...
Posted by Tracey Keen on Tuesday, May 11, 2010,
Working toward the goal of a world where all legitimate thyroid treatment options are better understood, better known, better accepted, more affordable, and legally available...a world where there is greater understanding among doctors, insurers, pharmacies, medical societies, and patients of the legitimate thyroid tests and treatment options available. http://www.facebook.com/profile.php?id=100000663753404#!/thyroidpatients Continue reading ...
Posted by Tracey Keen on Wednesday, April 28, 2010,
Here is an article from the TPA-UK site by Dr Barry Durrant-Peatfield ... http://www.tpa-uk.org.uk/self_medication.php Continue reading ...
Posted by Tracey Keen on Friday, April 23, 2010,
Please read Mary Shomon's response to this question. http://thyroid.about.com/b/2010/04/22/should-thyroid-patients-self-medicate.htm?nl=1and the comments below it. Self-medication does not refer to those of us who decide our own daily dose based on our awareness of our own needs - our doctors' prescribe our medication and order the relevant tests as necessary, so we are not putting our health at risk. We are lucky enough to live in a country where we can access sympathetic doctors who are willin... Continue reading ...
Posted by Tracey Keen on Monday, April 12, 2010,
I want to draw your attention to this important petition that I recently signed:
"WITCH HUNT OF DR SARAH MYHILL"
http://www.ipetitions.com/petition/witchhuntofdrsarahmyhill/
Doctor Myhill has come under fire from the GMC, presumably for her very helpful & informative website.
The GMC have formulated no actual allegations against her. However, on the basis of two complaints against her (not made by patients, but by other doctors), she has to appear before an Interim Order Panel on April 29th, when... Continue reading ...
Posted by Tracey Keen on Wednesday, April 7, 2010,
We have had confirmation that the 130mg tablets will be available here around mid-May. We have to thank Scott from PCNZ for organising this, it will be much appreciated. Continue reading ...
Posted by Tracey Keen on Wednesday, March 24, 2010,
PCNZ will soon have 130mg WTE tablets available. This will be great for people on larger daily doses...in some cases halving the number of pills needing to be taken and most definitely cutting the cost involved with each prescription. We'd like to thank Scott from PCNZ for listening to our needs and finding a solution that works. Continue reading ...
Posted by Tracey Keen on Wednesday, February 17, 2010,
"Don't let other people tell you what you want."
– Pat Riley
And that goes for our doctors - they are our employees - they work for us and we pay them for the service they provide. Just as we would a plumber or a builder.
And just as we would fire the plumber or the builder for not knowing their stuff - so we should fire the doctor who does not listen to our symptoms and work with us to improve our health!
All too often we are told, "You'll just have to learn to live with it" or "There is no ot... Continue reading ...
Posted by Tracey Keen on Tuesday, February 16, 2010,
We need more email support personnel - any and all areas!
All you would have to do is allow me to put your email address on the contact page of the website and be supportive when people from your area email you. Most of the time, people want to find a dr in their area, ask medication questions or find others to talk to.
Also -
if/when others do contact you, would you be interested in organising a group?
Groups do not have to be anything too organised - just a cuppa at the local mall, or ...
Continue reading ...
Posted by Tracey Keen on Thursday, February 4, 2010,
"Happiness is neither virtue nor pleasure nor this thing nor that but simply growth. We are happy when we are growing."
– William Butler Yeats Continue reading ...
Posted by Tracey Keen on Thursday, February 4, 2010,
TPA-UK is in the process of creating a world-wide Register of Counterexamples to the levothyroxine (T4)-only therapy. The objective is to draw to the attention of those responsible authorities throughout the world, the dire need for an urgent re-examination of the existing protocol for the diagnosis and management of the symptoms of hypothyroidism. The Register will list the names of sufferers who have been prescribed levothyroxine (T4) only therapy, which failed to alleviate or eliminate thei... Continue reading ...
Posted by Tracey Keen on Wednesday, February 3, 2010,
Due to supply issues in the US, stocks of 65mg tablets of Naturethroid have run out. PCNZ have been compounding capsules to fill prescriptions. Compounded capsules are usually 60mg strength but PCNZ have been compounding 65mg capsules to fill scripts for 65mg tablets. They do have smaller strength tablets in stock. The good news is that a shipment of Naturethroid is on its way from RLC Labs. Continue reading ...
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